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“Living life to the fullest” with MND – Theodora’s story

A woman sitting in lounge room. She has shoulder-length dark hair, glasses and wears a navy blue patterned shirt.

My Plan Manager client Theodora Sakr OAM says she feels like there’s a wheel: she’s in the middle, and all around are her supports, in the form of family, friends, the NDIS, MND New South Wales and service providers.

“They’re all there, helping me with what I need,” she says.

“I’m more grateful for every day and living life to the fullest and not taking anything for granted.”

Theodora, an accomplished lawyer who was recently awarded an Order of Australia Medal for her work on behalf of victims of asbestos and their families, says motor neurone disease (MND) has impacted her daily life in every way.

We’re sharing Theodora’s video story to mark Motor Neurone Disease Global Awareness Day, held on 21 June every year.

MND Australia explains that motor neurone disease affects the nerves (motor neurones) that communicate between the brain and the muscles that enable us to move, speak, swallow and breathe. In people with MND, the motor neurones gradually degenerate and die, causing the muscles to weaken and waste.

If you have MND, or care for someone with MND, MND Australia provides resources and support.

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My Plan Manager: NDIS Plan Management